Thursday, April 2, 2009

If I should (nearly) die...

"Morbid fascination with death" is a term often attributed to people who spend an inordinate amount of time thinking or researching the subject. One who doesn't look close enough might make the mistake of painting me with such a brush. They'd be wrong, but not as far off as you might think.

I was listening to NPR's Fresh Air again today, and an E.R. doctor was on, talking about the many decisions and circumstances involved with impending death. It not only brought to the surface the struggles during my own mother's last days (and years), but considerations about my own. That makes two fantastic, provocative interviews in a row - nice going F.A.!

A degree of intrinsic comfort is afforded to me whenever it comes to thoughts of my own demise. Maybe it's because I'm fat and happy and live a comfortable life, that the specter of Death appears distant, that the idea is not discomforting or threatening. Perhaps it is because the idea of The End represents in part a laying down of life's burdens. I don't welcome it, but for some reason I take a measure of pleasure in recreationally considering its aspects. I've cheerfully blogged about the topic before, focusing on the practical matter of disposing of my bloated, smelly carcass. Today I'll muse on my medical concerns, assuming we get the chance to see death coming, rather than an abrupt end where practical medical arrangements are not a factor.

The consideration of all of the desires, possibilities and circumstances involved in a person's foreseen-but-unavoidable death are more than another mortal should be saddled with. If the slightest care is taken to consider the wants of the decedent-to-be, there are no wrong answers. Do the best you can, more or less - that's plenty.

I certainly have my own worries and desires should something awful happen to my corpus ridiculi, but they wax and wane and slosh around in my head, and what I want now at a chubby and spry 37 may not pan out if I am stricken with a disease or simply the effects of old age. With that in mind, it borders on the narcissistic to demand from family, doctors and/or lawyers that this or that be done to the point of lawsuits and squabbling. *I* don't even know for sure what I want. I'm not comfortable at all with feeding tubes or respirators or transfusions, but since I'm not burdened with an organized faith to tell my how to live (and die), thank god those religious points are moot. Plus, I'm not currently prepared to anticipate the labyrinthine possibilities before they (probably won't) happen, much less write them all out. Call me lazy, but I'm taking the cheap and easy way out; call it my legacy.

My desires are more about practicality than pride, although pride can factor into it. My concerns aren't much different than many people's, including those I heard of my parents' when such discussions were necessary: comfort versus pain, and care versus cost. If I'm in pain, numb me. If I'm drooling, moaning or unresponsive, do what you can stand. Unfortunately, with the state of modern care, the cost of hospital stays dwarf the same stays in luxury hotels, so long term care is just out. I'll be goddamned if my hanging on for another month is worth the cost of a home or massive, crushing debt.

Bullet.

Even if home care is an option, it's not a likely candidate, especially if I'm unable to think, communicate or care for myself in basic ways. I don't doubt that my family loves me enough to wipe my ass and feed me a few times a week, but I've seen households that live that way and it is repulsive to me on the same level as torture. Not only does it trouble me (maybe this is where pride comes in, I don't know), but in that event I would consider my caretakers/loved ones the tortured more than myself.

This whole discussion changes direction on a dime - what if there's hope of a cure or other uptick? What if there's question about who owns the legal right to decide? God save me from being a Terry Schiavo. These are the excruciating twists that madden good people, and I don't want any part of it.

Again: bullet.

Smother me with a pillow, pull my plug or trip over my oxygen hose before I or anyone I care about suffers from any unanswerable questions, impossible ethical knots or horrendous financial responsibility owing to the our collective, hideous inability to assemble a fair method of funding and managing a medical care system.

On the other hand, if I'm rich as a lord or my insurance is top-notch at the time, hey, let's talk about this for a minute. Fluff my pillow, and swab my aft deck, and be quick about it. But otherwise leave me out of it, and let my loved ones lose not a moment of sleep about it.

1 comment:

Jessica (I've survived a brain tumor!) said...

So this has NOTHING to do with your blog, but I don't know how to comment otherwise. I am assuming that you are Cliff's awesome brother, and I have only heard the best from him about his brother. I haven't ever met Cliff, but we met on-line because I, too, have had a brain tumor. Only difference is mine was operatable whereas his isn't. So anyway, I'm glad that he has you, even though you don't live so close to him. And I'm glad that you encouraged him to write again. I think it's theraputic for him.